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The Boy Whose Skin Fell Off (Jonny Kennedy)

2016-11-16 1,238 Dailymotion

Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) -- which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer.

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