The Health Ministry has been urged to expedite access to a new drug therapy to treat those affected by spinal muscular atrophy (SMA), especially children, said the founder of NGO WeCareJourney Yap Sook Yee.<br /><br />Yee said that at a press conference at the Parliament lobby on Monday, accompanied by Petaling Jaya MP Maria Chin Abdullah, who met with Deputy Health Minister Dr Lee Boon Chye to discuss the matter.<br /><br />Yap also urged the government to consider and include SMA in the rare disease fund allocated under Budget 2019.<br /><br />Read more at https://www.thestar.com.my/news/nation/2018/11/19/allow-quicker-access-to-drug-therapy-for-spinal-muscular-atrophy-health-ministry-urged/
