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Mum of terminally ill 7-year-old says she can't keep heating on for her due to cost of living

2022-04-13 38 Dailymotion

<p>The mum of a terminally ill girl with just "days to live" says she can&#x27;t afford to keep the heating on due to the cost of living crisis.<br></p><p>Anastasia Hazell, seven, was diagnosed with an incurable brain tumour last March and given just one year to live. </p><p>Mum Alexandra Hazell, 35, said that she is struggling to keep the heating on in the family&#x27;s home as her daughter&#x27;s condition deteriorates. </p><p>Alexandra said: "The cost of living has just skyrocketed. We&#x27;ve had to turn the heating off twice. </p><p>"We just want to spend time with her but all my time is spent worrying about this."</p><p>Anastasia, who has a DIPG tumour, is unable to speak or walk and has to eat through a feeding tube. </p><p>The once "healthy and popular" schoolgirl is facing her final days as she has surpassed the grim prediction of doctors who didn&#x27;t think she would live past March. </p><p>Anastasia is being cared for at home by nurses and family as the family wanted to be together rather than having their daughter in hospital. </p><p>She is living with mum Alexandra, dad James, 35, and brother Ryker, three, in a village near Great Yarmouth, Norfolk. </p><p>Alexandra, a support worker, said: "Anastasia is getting towards the end and we&#x27;re still having to rattle around for money.</p><p>"Our heating has gone off twice as we&#x27;ve run out of oil. It&#x27;s just impossible. </p><p>"It got so bad we were all camped in her room with a wood burner. We were throwing wood on the fire to make the room warm enough to get through the night. </p><p>"The other time we ran out of oil we were having to put heated blankets on Anastasia because she was turning blue.</p><p>"We haven&#x27;t been able to give her a warm bath or shower sometimes. It&#x27;s crazy.</p><p>"There are weeks when we can&#x27;t afford basic things. </p><p>"We put away £1,000 for last Christmas but that was eaten up beforehand by food and heating costs."</p><p>Anastasia was described as a healthy girl before the devastating diagnosis last March, a week after her sixth birthday. </p><p>Her condition - a diffuse intrinsic pontine glioma, or DIPG - is a rare and aggressive brain tumour that is almost impossible to treat. </p><p>Doctors said that Anastasia&#x27;s tumour was incurable and gave her around 12 months to live. </p><p>Alexandra said: "Anastasia was a perfectly normal girl. She was doing really well in school. </p><p>"She was a singer and dancer. Totally healthy and normal girl. </p><p>"She had a lot of friends and was one of the more popular girls in class.</p><p>"The diagnosis came completely out of nowhere. We noticed one day that she was a bit weak on one side.</p><p>"The doctors found a tumour and she was rushed to Addenbrooke&#x27;s Hospital. That&#x27;s when her whole life changed. </p><p>"She&#x27;s just so poorly. Last night she was struggling to breathe.</p><p>"I&#x27;m thinking how many more days are we going to have. It&#x27;s a nightmare."<br></p>

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