The National Institute for Health and Care Excellence (NICE) has issued preliminary guidance stating that three drugs used to treat cystic fibrosis (CF) should not be used within the NHS.<br /><br />Kaftrio (ivacaftor/tezacaftor/elexacaftor), Orkambi (lumacaftor/ivacaftor), and Symkevi (ivacaftor/tezacaftor) are the three drugs in question, produced by Vertex Pharmaceuticals.<br /><br />Jess and Will Meyrick have a 2-year-old daughter called Ottilie with the condition.<br />