A baby who lost weight in the womb is the only child in the world with a rare condition which sees her have up to 34 seizures a day.<br /><br />Minnie Granger, two, was born weighing just 4lbs 4oz at 37 weeks - after doctors noticed she had lost 80g in the womb and induced her mum, Hannah Granger, 29.<br /><br />The tiny tot was taken for genetic testing and diagnosed with very rare chromosome deletion and 21 missing genes.<br /><br />Parents Hannah and Gavin, 30, a mechanic, later found out no one else in the world on the database had the same gene and chromosome mutation as their little girl. <br /><br />The condition causes Minnie to suffer with life-limiting severe epilepsy which is causing brain damage.<br /><br />Her family don't know how long she'll have left but want to make as many memories as they still can.<br /><br />Hannah, a full-time carer for Minnie, from Glasgow, Scotland said: "Minnie is a miracle and Minnie’s life matters.<br /><br />"We were advised that no-one on the genetic database has the same gene and chromosome mutation as Minnie - meaning she is the only person in the world. <br /><br />"She is one of a kind.<br /><br />"Every seizure Minnie has takes away some sort of development.<br /><br />"She's such a good wee girl.<br /><br />"She's got loads of personality.<br /><br />"She could be having a seizure one minute and smiling the next."<br /><br />Hannah was placed under consultant care at 36 weeks after a scan revealed Minnie had lost weight in the womb.<br /><br />She was induced at 37 weeks and Minnie was born on September 2, 2022, at 8.05pm.<br /><br />Doctors noticed her small dysmorphic features - low set ears and a low birth weight - which could indicate something was wrong.<br /><br />Hannah said: "Minnie’s temperature was so low I was allowed to hold her – she was wearing three cardigans, two hats, swaddled with three blankets and still on a hot mattress.<br /><br />"I was meant to be in this bubble with my new beautiful girl but my head was now all over the place."<br /><br />Minnie was taken for genetic testing and at 14 weeks old the family were told she had a micro deletion of chromosome region 2q24.2q24.3. <br /><br />They were told it was very rare and unknown but children with similar deletions suffered from many developmental delays.<br /><br />Hannah - who is also mum to Finley, 11, and Kai, five - said: "Our world as we knew it changed and would never be the same.<br /><br />"By this time Minnie could sit in her highchair, hold her head up was starting to wean, smiling and giggling watching her brothers. <br /><br />"We knew she would never have the life her brothers would have, and we knew she would possibly never get married and have a job but this interaction was amazing."<br /><br />But in June 2023 she had her first seizure.<br /><br />Hannah said: "With Minnie snuggled on my chest having a nap I felt her body go tight and tense and stiffen up. <br /><br />"Lifting her off me around 30 to 40 seconds later she did it again. I instantly knew this was wrong."<br /><br />To donate to help Minnie and her family go to https://www.gofundme.com/f/minnie-may-granger
